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As heard on NPR's Diane Rehm Show!
Clare Dunkle seemed to have an ideal life—two beautiful, high-achieving teenage daughters, a loving husband, and a satisfying and successful career as a children's book novelist. But it's when you let down your guard that the ax falls. Just after one daughter successfully conquered her depression, another daughter developed a life-threatening eating disorder. Co-published with Elena Vanishing, the memoir of her daughter, this is the story—told in brave, beautifully written, and unflinchingly honest prose—of one family's fight against a deadly disease, from an often ignored but important perspective: the mother of the anorexic.
- Sales Rank: #875219 in Books
- Published on: 2015-05-19
- Released on: 2015-05-19
- Original language: English
- Number of items: 1
- Dimensions: 9.50" h x 1.50" w x 6.50" l, .0 pounds
- Binding: Hardcover
- 464 pages
About the Author
Clare B. Dunkle is an award-winning author of seven acclaimed fantasy and science fiction novels, including The Hollow Kingdom Trilogy, the first book of which was a winner of the 2004 Mythopoeic Fantasy Award for Children's Literature. A Texan (and former Texas librarian), Clare now lives in Germany, but travels often to the United States to see her family, especially her two daughters, Valerie and Elena, and her grandchildren. Find out more about Clare at www.claredunkle.com.
Most helpful customer reviews
11 of 13 people found the following review helpful.
HOPE AND OTHER LUXURIES is important, informative and provocative
By Bookreporter
With HOPE AND OTHER LUXURIES, successful YA novelist Clare B. Dunkle joins a long line of celebrities, including journalist Marya Hornbacher and actor Portia de Rossi, who have shared their physically painful and emotionally tumultuous experiences with eating disorders.
The Diagnostic and Statistical Manual V (DSM-V) --- essentially the psychologist’s handbook --- defines several “feeding and eating disorders,” all of which are marked by persistent and harmful deviations from what we define as normal eating patterns. To date, researchers have yet to discover a definitive reason for why and how these disorders develop. As far as we know, eating disorders such as anorexia and bulimia tend to primarily affect women, and often occur in response to a traumatic event (e.g., rape, sexual assault, divorce). The symptoms that arise include severe food restricting, binging and purging, or excessive exercise, and function to exert control in an uncontrollable world, meet media-propagated beauty standards or dampen intense negative emotions --- and sometimes to deal with all three.
Unlike Hornbacher and de Rossi, Dunkle offers a fairly unique perspective in the eating disorders memoir literature by providing a voice for the family members who suffer alongside their ill relatives. Perhaps unintentionally, her book is coming out at a time when family-based treatment is becoming increasingly popular among eating disorder researchers and clinicians. The Maudsley Method, a recent but widely used type of treatment, attempts to instruct families how to help their adolescents with anorexia by encouraging them to normalize their weight and eating patterns. Psychologists, however, have yet to pay adequate attention to the emotional and psychological experiences of patients’ loved ones. Dunkle provides them with a voice.
In HOPE AND OTHER LUXURIES, Dunkle shares her experiences raising her daughter Elena, who struggles with anorexia during her adolescent years. Dunkle, her husband Joe, and their two daughters move from their home state of Texas to Germany, where Elena and her sister initially flourish in an all-girls boarding school. The young Elena is described as an enthusiastic go-getter. She takes delight in telling her mom fantastical stories and fighting for the bullied, underserved and ill. But suddenly, Elena loses her zest for life. She holes up in her room, sleeps all day, and snaps at her family members when they try to connect with her.
Although Dunkle had some prior experience with mental health and the treatment system --- her other daughter, Valerie, attempted suicide prior to the onset of Elena’s eating disorder --- she spends the majority of the book describing her struggles both accepting Elena’s diagnosis and getting her the treatment she so desperately needs. Their first encounter with an eating disorder treatment provider, Dr. Petras, did not augur well for the rest of their experiences. Although the doctor aptly diagnosed Elena with anorexia nervosa, his abrasive delivery, in addition to mixed messages from subsequent treatment providers, encouraged Dunkle to fight against Elena’s diagnosis. Elena, who also resisted the term, eventually tells her mother about the traumas she had experienced prior to exhibiting symptoms of the disorder. While away at boarding school, she was raped at the tragically young age of 13. Later, she suffered an unrelated miscarriage.
Finally, Dunkle begins to understand what Elena had really been through. I don’t say this to blame Dunkle for misunderstanding. The scarcity of information about, and funded treatment for, eating disorders is criminal. Dunkle’s admission that she had incomplete understanding of her daughter’s illness is powerful and brave. Undeserved self-blame and guilt on the part of parents of the mentally ill is common, yet there are few who are willing to tell their stories for the benefit of others as Dunkle does here.
Dunkle also highlights the inadequacy of treatment for eating disorders and, frankly, all mental health issues in this country. Elena bounces from program to program, where many of her providers are not versed in eating disorder symptomatology or treatment. When Dunkle is able to find a specialized program for Elena, her insurance cuts her off as soon as she starts making progress. She describes her tedious and often expensive process in navigating the medical insurance system, and determines that when it comes down to it, our insurance system is more concerned with money than health.
Dunkle brings up several important points about the emotional, interpersonal and monetary costs of living with someone afflicted with an eating disorder. Her book, however, suffers somewhat from a lack of editing. Clocking in at a whopping 557 pages, it can feel more like an emotional exorcism than a memoir. Throughout, she weaves in excerpts from her YA novels, attempting to give readers insight into how her struggles with Elena influenced her writing. The impulse is understandable --- art imitates life, and vice versa --- but reading about her writing process felt exhausting at times.
Overall, HOPE AND OTHER LUXURIES is important, informative and provocative. I hope that Dunkle’s story will inspire others who love those suffering from mental illness to speak up about their experiences. Only with awareness and understanding can we achieve better treatment for ourselves and our loved ones.
Reviewed by Amelia Kidd
2 of 2 people found the following review helpful.
A journey through hell
By J. Stephens
The subtitle tells it all: a mother's life with a daughter's anorexia. We hear so much about the hell that people with anorexia suffer, but we don't always hear how the families suffer as well. From the initial shock of hearing that Elena was anorexic to battling both insurance companies and a medical system that seemed stacked against recovery, Clare take her readers on a journey with twists and turns, highs and lows, and the complicated emotions she realizes that every time Elena seems to be getting better, another ax falls to smash their happiness.
If you want to read how anorexia impacts those around the sufferer, read this book.
2 of 2 people found the following review helpful.
At times, painful to read but at the same time hard to put down
By Amazon Customer
While this memoir was painful to read at times, it was very compelling and hard to put down. Claire is an excellent writer who describes every situation in a way that makes you feel like you are there living it too. The story is very real and raw, and any mother who has raised children can empathize with the roller coaster emotions that Claire goes through with her daughter's diagnosis, treatment, and subsequent recovery. I read both Claire's and Elena's memoirs and enjoyed them very much. I would like to read more of Claire's books, but I am not a huge fan of the fantasy genre. I hope she considers writing more real life stories.
See all 13 customer reviews...
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